True! 😉And I’m very glad to hear that you are all right. My son doesn’t drive, and 90% of his seizures have taken place in his bed, where he’s sustained only very minor injuries. We got rid of his nightstands and replaced them with soft ottomans and that has helped. But it’s still a concern, to suddenly lose consciousness. What if he were on the stairs? What if that time he seized in the kitchen he had hit his head on the hard countertop going down? It’s just a constant source of worry and concern, as I’m sure it must be for you. We did not pursue doing an MRI because it would have been hard on my son and likely wouldn’t have told us much anyway.

I have noticed that my son tends to have a seizure when he’s been very agitated or anxious (he has OCD too). He seems to use them to clear out and reset his neuro-system because he’s always happy and easy going after the fact. One of the things that we hope the neurofeedback will address is the anxiety, as well as the seizures themselves. So far, so good…. his brain waves are no longer showing micro “absence” seizures, as they were just a few months ago.

The neurofeedback is really pretty cool — it’s essentially training his brain how to retrain itself. One of the things they do is have him watch a movie he likes, but it only shows up on a small part of the screen. He has to intend for it to get bigger in order to watch it that way, and of course, it doesn’t stay. As he gets better at keeping it at the larger size, they up the difficulty. There’s another “game” with a flying avatar (bird, plane, pig with wings) that you steer through various targets, simply with thought/intention. It truly illustrates how powerful the human brain really is. We’ve only been at this about 2.5 months, but I look forward to seeing what will come of it.

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Dispelling cultural myths with research-driven stories. My favorite word is “specious.” Not fragile like a flower; fragile like a bomb! Twitter @ElleBeau

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